The first week of college

My son started college this week.  This is a BIG deal at our house.  S has worked very hard to get to this point in his life.  He hasn’t done this alone.  We haven’t done this alone.  It has taken a village to get our son here.  In the post, “I have been successful”, my son writes about the help he has received from others.  It has truly been a group effort.

Let me tell you about this week.

The day before college starts

This post talks about all we have done this past year to get to this point.  It has been a lot of work, but we made it to the day before.

The first day of classes

I dropped my son off before his morning class.  His last words to me were, “Pray for me.”  Oh, I have been...a lot.

The second day of classes

Today was just one class, English.  My son had already had contact with the professor.  He said this classroom is smaller than the other classrooms he is in, so there are challenges maneuvering himself to the front of the room.  Other students helped get the table where he needed it.  The helpfulness of others has been a true blessing!

This weekend

This weekend we will be helping S get himself organized.  This is a challenge for him, but he is motivated.  He already has his new digital recorder.  He has purchased new Dragon software for himself (appreciate the student discount).  He needed the Premium version which is supposed to transcribe his recorded lectures.  Can we get a Hallelujah for that?  Technology is a wonderful thing!!

In addition to starting classes, my son also had a dental appointment and a chiropractor appointment.  Fun, fun, fun!

Next week should be a routine week of classes for him.  My friend who has offered to help with transportation has already asked about next week.  I told her we need one full week to really work through the logistics of everything - timing for drop off/pick up, tutoring schedules, additional meetings, and which parking spaces are the best options for S to get himself to class.  We had some issues with Thursday’s parking spaces and the path that a wheelchair is expected to get through and around.  S decided he would rather wheel himself for a longer distance than have the closer route.

This weekend will be spent on the couch with chocolate enjoying my son's successful week!

The first day of classes

I dropped my son off before his morning class.  His last words to me were, “Pray for me.”  Oh, I have been...a lot.  I put that on Facebook, so S had many prayer warriors praying for him.

It was a pretty awesome moment to see him take his first “step” (I should say roll) into this new chapter of his life.

I was allowed to take a picture at home but not at school.  

His first day went well.  He didn't get lost. He ran into a student he attended co-op with a couple of years ago, and this kind young man made sure S got to the right classroom for Statistics.

He said the worst part of the day was just trying to get everything back into his bag.  His pencil fell on the floor.  His audio recorder fell on the floor and the batteries fell out.  When his dad went to show him that the file was still on the recorder, dad deleted the file.  Oops!  (Dad is buying him a new recorder tonight.) Packing his bag up has always been a challenge for him. It will get faster and easier with practice.

He talked to his teachers about his accommodations. He went to the Tutoring Center and is set up to start Statistics tutoring next week. He met up with the Assistive Technology Coordinator in one of the buildings, and this very helpful man made sure everything was set up in the classroom for S.  

He is working on his homework as I am typing this. We are thankful Day 1 was successful. Tomorrow is just English class. Hoping for another successful day!

You will find me on the couch with chocolate celebrating the successes in life!

The day before college starts

Here it is!  We made it.  It is the day before college starts.  It has been a process to get to this point. There have been many appointments scheduled, many trips to the college, many assistive technology decisions made, many logistical things that we have had to think through….but it has arrived.  The day before school….

How did we get here?

It has been a process.  We like to tell our son that these are all learning opportunities for him.  I think he’s tired of all of these opportunities.

The following list of blog posts is kind of a picture of what the process has been like the past year.  We started working toward this transition a long time ago, but some things just can’t be done until the end.

6 Steps for Transitioning a Child with Special Needs
When the insurance authorization letter arrives...

Low Vision Diagnosis
We visited the college.

Senior Stress and ADD

Visit with DBVI Vocational Rehab

Get through the wave

Getting ready for college

Ummmm...you don’t know what it’s like

A day at the college

Who knew buying a bag was so difficult?

Stop looking at me!

A Week of College Stuff

College just got real.

Homeschooling was REALLY comfortable!

What have we been doing this week?

This week has been a collaborative effort on our family’s part to make sure that S has everything he needs to be successful.

We have been to campus a number of times in the past week making sure S can get himself around campus.  The challenge he has with his Low Vision is that he can’t see the building names across campus.  He needs to know his exact path to follow to get from A to B.  We have visited campus frequently.  He has wheeled himself around.  We have talked out a path.  We have found landmarks for him to identify.  

Oh...another challenge is that it’s not just a matter of getting to the building and entering a door. He has to find the door that has the handicap accessible button or the door with the ramp.  

One more challenge S has is that he has a horrible sense of direction; however, he is very good with maps and creating a picture in his head.  He has studied the campus map.  We created a campus made of Legos, and he has moved the Lego man around campus and talked about the path.

He has his school supplies.  His supply list is somewhat different than other students.  He has Assistive Technology devices and software to help with his Low Vision and fine motor issues due to Cerebral Palsy.  He is using Zoom Text, Dragon Dictation, and the EmPower program through efofex software (free software for students with special needs to help with math and science equations and graphing) along with:

The Transformer which projects an enlarged image onto his laptop screen.  He has just received this, so he needs some practice with it to see how helpful it will really be.

He received a syllabus already from one teacher with her supplies on it.  We have had to try to figure out exactly what he will need from that list as we look at how he will adapt her requirements to fit his needs.  He has emailed her, and she seems quite receptive to what he has suggested.

S also has ADD which presents a challenge when we are talking about college.  Time management and planning are going to be key in his success.  He likes using Google Calendar and the task list.  He has already entered all of his assignments from the syllabus he has received.  (I won’t tell how long it actually took him to do that task.)

S likes looking at a calendar also.  We have a 4 week calendar on our fridge that he frequently stops by to look at and gets sucked into the “Calendar Zone”.  We purchased a 4 month calendar to hang on the wall near his desk.  J has filled it in for him for this semester and color coded everything for S.

At this point, we believe we have everything in place for S to be successful.  I'm sure we are missing something. I am anxious to talk to him tomorrow afternoon to see how his first day went. As he likes to tell us, “You are more excited about this than I am.”  Maybe...just maybe….

I will be on the couch with chocolate looking forward to seeing how this next chapter in my son’s life plays out!

Homeschooling was REALLY comfortable!

My son, S, is starting college next week.  It’s hard to believe it is here already.  He is in denial about it.  He did not want to graduate.  He is not excited about starting college.  When asked why he is attending college if he isn’t excited about it, he responds, “I know I have to go to college for what I want to do.”  Okay.  College will be much better if you act like you are enjoying it.

Last week, college became very real for him.  He was having a lot of anxious moments about starting school.  This has been concerning for me and my husband.  Do we make him go if he is feeling this anxious about it?  Do we have him wait to start?  Would waiting help the anxiety go away?

We have had many talks with him about school and what it will entail for him.  Our son has multiple disabilities - Cerebral Palsy, Low Vision, and ADD.  He has more challenges than the average freshman.  He knows that all of his accommodations are in place.  He knows he has various support service personnel to help him at school and at two different state agencies.  He knows he has family and friends supporting him.  Still, there has been this anxiety about going to college.

My son was homeschooled for seven years.  We know he is prepared academically for college.  I have probably had some mommy anxious moments too, “Did I do a good enough job getting him ready?  Is he concerned about the work load?”.

Last week I was talking to a lady I have become friends with this past year.  I was telling her about S and his anxiety about college.  She said, “He is going to do just fine. He is ready for the classes”  

On our drive home after horseback riding, I shared this story with him.  I wanted him to know that he has a lot of people who believe in him and his ability to be successful.

The following conversation took place.

“I know I am going to do fine in my classes.”  

I stopped, looked at him, and clarified, “You aren’t worried about your classes?”

“Nope!”

“Then why do you have such anxiety about going to college if you know you are going to do fine in your classes?  What is there to cause you to not want to attend?”

“Life is much easier at home.  Homeschooling was very comfortable, and I just knew that everything was taken care of and set up for me.”

Wow!  Didn’t expect that response!  I enjoyed that nice warm feeling for a moment and realized….

It is time for this baby bird to be pushed out of the nest and fly!  

You will find me on the couch with chocolate appreciating the fact that our homeschool was successful and, apparently, really comfortable.

College just got real!

My son starts college in two weeks.  He’s still very apprehensive about it.  There is a lot of change taking place.  He is going to be far removed from his comfort zone.  We have everything in place for him.

*His support services are established.

*He has met with all of the people who are providing support services.

*He has Vocational Rehab plans in place through two different agencies.

*He has an Academic Plan in place with the college.

*He has his accommodations letters in hand.

*He is picking up his assistive technology next week.

*He has registered for classes.

*He has paid tuition.

*He has purchased his books.

The other day he checked his college email, and there it was - the syllabus for English Composition.  That freaked him out.    

There is nothing in that class that he can’t do.  There are things he will do differently (accommodations).  He emailed the professor with his accommodations letter attached and explained what he was going to need to do differently based upon her class requirements.  We told him he is being proactive which is a good thing.  

I had to explain to him that everyone in his class is going to be a little bit scared.  I told him to look around that first day and realize that every student in there will have some anxiety about being in a college course.  It’s not just him.  He’s not alone, and he will be okay.

I will be on the couch with chocolate which I may or may not share with my son.

Who knew buying a bag was so difficult?

As we are preparing for our son to start college next month, one of the things S needed to buy was a bag to carry his books and laptop.  Most college students go to a store and buy a backpack, messenger bag, or sling bag, and they are set.  Of course, it can't be that simple. Since most things in S's life aren't easy, why would buying a bag be any different?

Backpacks

Because S will be using his wheelchair on campus, he needs a bag that he can easily get to while in his wheelchair.  Some people who use wheelchairs have no problems putting a backpack onto the handles of their chair and turning around to get things out of it.  S's CP and scoliosis prevent him from turning like that.  A backpack doesn't work.

Messenger Bag

He has a messenger bag that he uses on a daily basis; however, it is too small for what he will need at college.  It also doesn't lend itself to being used in his wheelchair.  Because of the way it hangs on him while he sits, it impedes him pushing himself in his wheelchair.  Sometimes he just throws it around his neck wearing it like a feed bag; however, put a laptop and a textbook or two in there and you are asking for a lot of neck problems.  He doesn't need anything else that needs to be dealt with.

Another issue he has with his messenger bag is that there are too many pockets that he can throw "stuff" into.  The problem with this is twofold:

1.  He has a hard time seeing into the deep, dark abyss that are the pockets of his bag to see what he is looking for.

2.  ADD:  He finds something else that he was looking for earlier and distracts himself from what he is supposed to be finding.

If you are ever doing a scavenger hunt, his bag would be the one you would want to dig through to find random things that most people would never carry around.  Guaranteed that you would probably find it in that bag!

Wheelchair Carry All

S has a Carry All that attaches under his wheelchair seat.  It is nice for carrying things, but it is very difficult for him to get things out of it himself.  It requires him to spread his legs and bend over at the same time.  His CP doesn't allow him to do that.  He can spread his legs OR he can bend over.  Take your pick.

Sling Bags

We think this is the best option.  He is going to have to wear it on his chest rather than his back because he won't be positioned in his wheelchair correctly.  The challenges we have found with a sling bag include:

1.  How is the zipper positioned on it? Is it angled or more a straight line at the top?

2.  What is the size of the bag?  S isn't very tall, so there isn't a lot of body space for the bag to sit on his chest/lap.

3.  Regarding the size of the bag, will a laptop fit in the bag that best fits his body?

We ordered two sling bags, one smaller and one larger.  The smaller one is a great fit for S’s body and doesn’t look like he could fit in it.  We were originally told that he was going to be getting a Surface tablet for school (one of his agencies is providing AT support for college).  The Amazon review for this bag said that a Surface tablet fits with a book.  Perfect!

Not quite so simple….S met with AT and was told he will be getting a laptop.  Guess what is just a little too big for the perfect bag?  The laptop.  We have to decide if he will use the bigger bag which is quite big but would fit his books and laptop or if we start a new search.

Who knew buying a bag was so difficult? Difficult enough that I wrote a whole blog post about it. Go figure!

I will be on the couch with chocolate and the ipad searching for the perfect bag.

Getting ready for college

The past week has been quite busy for S as he is checking things off his to-do list for college.  

*As I am writing this, he and my husband are meeting with the Assistive Technology person through DBVI to figure out what assistive technology he will need/use during college.

*S attended New Student Experience (NSE) at the community college the other afternoon.  My husband took him and said there was good information given.

*S paid his tuition the other day, so he is officially registered for Fall semester classes.

*S bought his books for his classes.  Welcome to the reality of college expenses!

*S tried to get his student ID and parking permit, but he can’t do that until July 20.  (He doesn’t drive, but the parking permit fee is already included in his student fees.  If he paid for it, we will get it.)

*At the New Student Experience, S met a lady who runs a program at the college that he is interested in.  He applied to be part of this federally funded program that serves low income, first generation college students, and/or students who have disabilities.

*S purchased his bag for school.  (This might have to be its own post some day.  There is a lot of thought that goes into how he gets things from A to B and how he can maneuver himself to utilize the bag.)

*My husband realized that S needs to be on campus more often prior to classes starting to figure out how to get around.  With his Low Vision, he can’t see the signs on the buildings.  It’s also not just a matter of finding the buildings, he has to find the handicapped accessible doors/ramps into the building.  My husband said they received a really good map at NSE that shows a lot of that information.  S is good with maps.  He just has a poor sense of direction.  He can always ask for help.

*S still needs to get a copy of his schedule to the Disabled Student Services Office. He has already met with them to set up his accommodations for his classes.

It’s been busy at our house!  You will find me on the couch with chocolate and air conditioning.  It has been HOT here this week!

Linking up with:

http://www.lovethatmax.com/

What My Senior Thinks & Testing

The Senior

S has been working to get his last two classes finished.  I won’t say he is working joyfully because he isn’t.

This is what I heard from him on Tuesday…

“I think we should make a deal.”

“I think since I am so close to being finished that you should cut me some slack.”

“I think that I shouldn’t have to write the last essay.”

“I think since you are more excited about me being done than I am that you should just let me be finished.  Then, you can be really excited.”

“I think that I have too much to juggle right now.”

...and the list goes on.  I told him he doesn’t have to finish German IV since that is an elective, but he must finish English 12.  Guess which class he wants to finish and which one he doesn’t?  In addition to everything else he was thinking that day, he thinks I was being ridiculous.

I will say he continued to plug away at his work, so he gets a shout out for that.

***********************************************************************************************************

This was almost an appointment/activity free week for him which gave him a lot of time to get work done.  This was good because he has 3 appointments, youth group, and horseback riding next week.  He needs to talk to transportation also because of his assigned pickup location which isn’t near our house nor is it safe for him to get there (traffic, lack of sidewalks, distance, etc.).  

S has been in frequent contact with the Assistive Technology person at the community college trying to coordinate his accommodations for the placement tests he needs to take.  I have to say that everyone he has emailed at the college has been very quick in their responses.  The AT person has emailed late in the evening and early in the morning.  We were hoping S could get his testing done this week, and he was able to get in to start his English placement test today.  He is there right now.  We are hoping they will waive the Math placement test after they evaluate his request regarding his College Algebra course.  We shall see.  

This afternoon he is doing a telephone conference with his Vocational Rehab counselor prior to their meeting next week.

He did make some graduation party decisions for us which is progress.  Yeah! He knows it is coming.  He has agreed to go to the Senior Meet and Greet which is being held the day before the commencement ceremony.  He also agreed to join the Google group for the graduates.  

The Sophomore

Testing!  That was the word of the week for J and school.  Because it was AP exam week and SOL testing at school, the schedules have been crazy for the kids.  J took his AP History exam yesterday.  He has his Chemistry SOL today.  Next week he will take his History SOL.  Then they will ramp up for finals.

J went to the doctor yesterday to talk about a referral to an allergist.  We talked about if he would be a candidate for allergy shots.  His seasonal allergies are getting worse and he is limited to what he can take due to his high blood pressure.  The doctor has ordered the initial labs for a blood draw; however, J has to wait until Monday since he needs to be off of his allergy medication for at least 3 days.  

He only had practice for 3 days this week because there were other activities at their facility. Since there is no practice tonight, we are heading to Busch Gardens for a little family fun.

On the Homefront

We have accomplished many tasks on our massive to-do lists.  My husband finished sheetrocking the garage for part of my Mother’s Day gift.  It looks very nice out there now. The yard was mowed.  S’s announcements were addressed, stamped, and mailed.  We went to Party City to look at plates, silverware, cups, etc. for the party.  

I have all of the pictures sorted for S’s photo boards.  J is going to finish putting them together this weekend.  There are so many!!  It has been fun looking through the pictures.

What did I write this week?

Take your test scores and….

For some entertaining thoughts from my husband on life with a senior, check out his post - A "Little, Orange" Support Team.  

This weekend you will find me on the couch with chocolate listening to more of my senior's thoughts. Have a good one!

Linking up with:

End of the Year Craziness

The Senior

S has had a busy week.  He is working diligently to finish up his last two courses, English and German IV.

It has also been a busy week of working on his to-do list.  He has made contact with various agencies and offices.  He is working hard to coordinate accommodations for his placement tests at the college.  His Vocational Rehab counselor at DBVI was happy to hear from him.  An appointment has been scheduled to meet with her.  He has one week that already has 4 appointments scheduled.  He’s not excited about that; however, they will be done.

S still struggles with the challenge of not knowing what he is going to do when he grows up. We have tried explaining to him, along with the help of other adults in his life, that it is okay to not know exactly.  People change their minds as they are exposed to other opportunities.  He has been told that he needs to move forward.  Indecision can’t stop you from doing something. I think he’s getting it, but the challenge is real.  

S had a chiropractic appointment on Monday (she was an adult who gave guidance referencing the above topic).  This morning he had horseback riding.  He isn’t volunteering again this weekend.  Still trying to give him time to wrap some things up.

The Sophomore

J had a busy week at school.  They are gearing up for exams.  He has his AP History exam next week and a Chemistry SOL (VA’s standardized tests) the next day.

J had a doctor’s appointment Monday morning for a very swollen lymph node behind his ear (visible across the room).  They realized while we were there that he needed another immunization.  They could do it that day or come back as a walk-in.  We have tried the walk-in option before.  It’s not as simple as they make it sound.  He said, “I’m here.  I will do it today.”

J had 14 hours of practice this week.  He stayed home Monday night.  His text to me after school had a poop emoji and the phrase “I feel like I’m dying.” His allergies are really bad, and he can’t take a lot of medications to help with them because of his high blood pressure.  The doctor thinks that is what caused his lymph node to be so swollen; however, she measured it and recorded it. It fell into the monitor category. It is much smaller now.  

J spent time creating t-shirts for a family reunion we will be attending this summer while we are in Minnesota.  My mother-in-law’s family is having a reunion.  There are 9 kids in her family. We worked it so S’s graduation party would be around the same time.  My husband hasn’t seen many of his cousins in 20+ years.  He would like to see them.  Each sibling’s family was designated a color to wear.  J said he would design a shirt for our group to wear.  We placed the bulk order this weekend, so I guess we better remember to bring them with us.

On the Homefront

We were able to get a lot done on our to-do list last weekend only to continue adding things.  I need longer paper.  

I ended up having the flu Saturday night.  Yeah!  That wasn’t fun. Thank goodness I was the only one who had it.  Unfortunately, that meant we couldn’t preview our family pictures on Sunday.  We are doing that this weekend.

We are continuing to work on our to-do list.  The calendar is filling up quickly with J’s exam schedule and S’s appointments.

J and I have been working on S’s photo boards for his graduation party.  Since we are taking the party on the road, everything needs to be done before we get there.  We want to enjoy our time in Minnesota without having to do additional tasks that could have been done already (like the photo boards).  It has been a lot of fun going through the pictures.

This weekend we are going to keep working on our list.  For Mother’s Day, we are going to enjoy time together.  We are grilling for supper that night.  The men in my house are good cooks.  I am very thankful for that!

What did I write this week?

We spoke “Bulgarish”.

High Blood Pressure Awareness Month

Happy Mother’s Day!  I will be on the couch with chocolate enjoying my family.

Linking up with: