What my son has learned - the first year of college

S has officially made it through the first year of college!!!!!!  It has been quite the experience for him…..and us.  He has received an education and MANY learning opportunities.  There have been “growing pains”.

He has grown up this past year.  He has always been an advocate for himself, but he really stepped up to the plate at college.  He has addressed many issues on campus regarding accessibility, and he presented at a workshop regarding accessibility as a student (just realized I never wrote about that).  He has learned that college isn’t cheap and that textbooks are ridiculously priced!  

He has learned that his parents have been trying to prepare him for the reality of college throughout the years (schedules, due dates, task management).  He has also learned that he is weak in some most of these areas.

He has learned that he does well with an online format.  Despite the fact that he’s not a morning person, he learned that he prefers morning classes over afternoon classes.  He has learned that self-paced isn’t necessarily as great as it sounds.  He has learned that due dates are real.

I think my son’s biggest lesson learned this year is that he CAN do this.  He has done well.  We encouraged him to start with a lighter load this year to get used to everything. He will be taking two classes during summer school which is on an accelerated cycle. For fall semester, he has currently scheduled three classes for himself.  He can do it.  He just needs to remember that.

He has learned that he has a huge support system in place. He has learned that we all want him to be the best that he can be.

Here is a recap of posts I wrote during S’s first year of school:

Ummmm...You don't know what it's like.

College just got real!

Homeschooling was REALLY comfortable!

The first week of college

What are the other kids doing?

I thought you were exaggerating.

Did you ever think…?

Due dates are not optional!

First semester of college is finished!

“Winging it” is not a plan for success.

How is S with time management?

I will be on the couch with chocolate celebrating this successful first year and remembering all of the lessons learned.  

How is S with time management?

S:  I’m doing well with my schoolwork.

Me:  And you should be.  You only have one class.

This was the tail end of a conversation that my son and I were having the other day.  This conversation started when he came downstairs at approximately 1:00 pm to start his day.  The deal we have is that if you are living at home as a young adult you need to be a productive member of society.  Most productive members start their day prior to 1:00.  I know, I know. Some people work the night shift.  He does not!

[Disclaimer:  This post might seem like it is jumping all over the place.  It has felt that way at our house the past few months. Welcome to our world!]

How did we get here?

There are so many things leading up to this point.  S graduated from high school last year and is currently a student at our local community college.  He started last semester with 7 credits, and that was enough for him.  

Fall Semester

A few posts I wrote last semester include:

The day before college starts

I thought you were exaggerating.

Due dates are not optional!

First semester of college is finished!

There is a common theme in these posts and they have to do with time management and organization.  Our son who is attending college with CP and Low Vision is having a challenging time with his ADD at school.

Spring Semester

This challenge is evidenced by his idea of a plan for college which I had to write about early this semester:  “Winging it” is not a plan for college success.”

He started this semester with two classes.  He is now down to one.  He was missing deadlines in one class.  Not only was he turning in work late, it was incomplete and not his best work.  We had to sit down with him and inform him that it was time to drop the one class, so he could salvage his other class.  

Discussions with Vocational Rehab Counselor

A couple of weeks ago we were at the ophthalmologist’s office.  S’s Vocational Rehab Counselor from DBVI joined us for the appointment.  Since we were there for approximately 3 hours, we had plenty of time to visit with her.  She asked S how school was going.  

After he talked around the issue for 5 minutes, I asked, “Did you tell her you dropped a class?”  

“I kind of did.”  

“No, you didn’t.”

She asked S how he was with time management and organization; she proceeded to offer him many suggestions to help himself with both issues.  At one point, she asked him if he has heard all of this from his parents because “I see your parents sitting over there laughing.”  We told her he can continue to hear the same information over and over and over and over because maybe he will try implementing some of these strategies.

We met with his VR counselor again a couple of days later for a meeting.  She asked us in the meeting, “How is S with time management?”  It is nonexistent.  We explained to her EVERYTHING we have suggested to S to help with his time management.  My husband and I are great at reading and researching.  Everything we have read, we have tried with him.  The lists on websites, in books, recommendations from professionals are all things we have tried with him.

The challenge we have now is that S is a young adult.  We can’t make him “do”.  We can’t enable him.  We can suggest.  We can support.  He must be the “doer”.  He must implement strategies and ask for help when needed.

I will be on the couch with chocolate.....

This is a timely post because I just realized that February is Low Vision Awareness month.  Our son was identified as Low Vision right before the start of his senior year (fall of 2014).  The label has actually been a good thing because the Department of Blind and Visually Impaired is providing our son with great services.  We have pondered the question, “Why wasn’t he identified earlier?” although that doesn’t really matter.  We are in the here and now, and he is receiving the care he needs….which brings me to this post.

I have a purse full of glasses.

Yesterday my son and I headed to the optical shop (OS).  We have been customers here for more than 10 years.  They know my family well.

This is how the initial conversation started as we walked in the door.

OS:  How can we help you?

Me:  It’s complicated.

[Now we had everyone’s attention.  It’s an optical shop.  How complicated can it be?  Oh, it was my family.  Where there’s a will, there’s a way.]

OS:  Oh, by all means, come to table 2.

We went over there.  It took a little bit to get S maneuvered up on the tall chairs.

OS:  What’s going on?  Didn’t S just get new glasses?

Me:  Why yes.  We just picked them up 3 weeks ago.

OS:  Is there a problem with them?

Me:  No

OS:  What do you need today?

They should have known something was up when I walked through the door with my purse.  I rarely carry a purse.  And, at this point, I started pulling S’s glasses out of my purse….one pair, two pairs, three pairs, four pairs, and five pairs.  Remember, he was wearing a pair also.

Me:  Here’s the situation.  S was referred to an ophthalmologist from his ophthalmologist to discuss a possible eye surgery.  The new ophthalmologist would like to see him again after he has been wearing glasses with no prisms in the lenses.  [S’s glasses have very thick prism lenses in them.  The surgery being discussed would be on his eye muscles and hopefully reduce or eliminate the need for prisms.]  We told the ophthalmologist that we had glasses at home that didn’t have prisms in them.  Unfortunately, they are not the right prescription for him.  Long story short, he needs new lenses.  What is the best option?  Replace lenses in a pair of frames I have with or get new frames and lenses.

This optical shop has always taken good care of us.  We are very good customers (think $$$$). All four people in my household wear glasses or contacts.  Thank goodness we have good vision coverage through my husband’s work; however, we were private paying this pair of glasses.  S’s glasses tend to be expensive because of the high power, prisms, transitions, etc.  It helped that these didn’t require prisms, and we opted to not do transition lenses.  We don’t know what is going to happen - surgery or no surgery, prisms or no prisms.  We are saving our insurance coverage for his permanent pair of glasses once everything is figured out.

The manager of the optical shop clicked around on her computer for a while and presented me with a very reasonable price for frames and lenses.  S hates picking out new frames; however, he picked a frame quickly.  Now we wait and hope that they come in quickly.  

Obviously, since I showed up there with a purse full of glasses, S has glasses that need to be cleaned out of our house his room. We will get in his bedroom and find out how many other pairs of glasses happen to be buried in there.  We will take them to the optical shop so they can be donated through the Lions Eyeglass Recycling Program.

You can find me on the couch with chocolate and my purse and a bag of old glasses ready to be donated while we wait for the call that S’s new glasses have come in.  Enjoy the weekend!

First semester of college is finished!

Today is the last day of my son’s first semester of college.  It has been an educational semester to say the least.  Okay, I will be honest.  It has been a challenge.  

When the semester first started, I wrote some posts about my son’s ADD and college.  I didn’t post what I wrote as I tried to figure out new boundaries for myself and my son; what I can write about and what I can’t.  I have been off the grid for a while trying to figure this out.

However, today is cause for celebration.  S made it through the semester.  It hasn’t been easy. He has worked EXTREMELY hard.  He has studied a lot.  

My son attends college as a student with three identified disabilities:  Cerebral Palsy - Spastic Quadriplegia, Low Vision, and ADD.  He had accommodations in place before the semester started.  His professors have been awesome about working with him so he could be successful. His biggest challenges came from his ADD:  organization skills,  time management, creating and executing a plan, and prioritizing tasks.

I have so many scenarios I could write about showcasing his challenges, but I haven’t.  Today’s scenario kind of wraps it all up.  

For his last final, my son had to write a final essay (500-750 words) to be turned in at 1:30 today. We planned on leaving at 12:30.  He had to write a final analysis of his writing throughout the semester for his English class.  They have had the opportunity to do extra credit related to this final project after each essay.  He has done that.  He was setting himself up for success.  He created a study plan to get himself through finals.  He knew what needed to be done to keep himself on track.  That train derailed early on…..

Last night, he was typing his essay.  We recommended that he finish it last night so he could sleep in today.  I will skip all of the boring details.  Here was what happened.

Today’s schedule:

2:30 AM:  S came upstairs kicking each step on the way which woke me up.  He informed me he wasn’t finished.

7:30 AM:  S woke up to finish writing.

9:00 AM:  Told me he was almost finished

11:00 AM:  Thought he was done.  Not sure on his word count.  Checked it.  He had 305 words.  Better write some a lot more.

11:30 AM:  Had 490 words.  Wrote one more sentence to push it to 504.

12:27 PM:  Printed paper.  Couldn’t find his phone.  Needed a backpack to put his paper in.  Needed a pencil.

1:40 PM:  I received a text from him that his paper was turned in.

At the end of the day (or semester), he finished. He made it through.  Next semester needs to be different.  He knows what areas he really needs to work on to help himself get through school and life a little easier.

I will be on the couch with chocolate and wine.  I think my husband may join me on the couch with a beer. Enjoy your weekend! We will.

October is ADHD Awareness Month, so I had planned on compiling a series of posts for this month.  My son was diagnosed with ADD 9 years ago and has been on medication since that time.  It was a life changing diagnosis for him.

My husband and I are pretty well versed on ADD.  We have read a lot about it.  We have tried many strategies to help our son in areas that are struggles for him due to his ADD:  time management, organization, prioritization of tasks.  We have purchased apps for his phone.  We have purchased wall calendars to try to help him visualize short and long term deadlines.  We have helped him set up binders.  You name it...we have tried it.

This leads me to my opening statement.  I planned on a series of posts.  I had even started putting ideas together.  Then, my son started college!  Wow!  It has been a time in our house. There are some good times and there are some tough times.

Not only is my son a college student, he is a college student who has Cerebral Palsy, Low Vision, and ADD.  Of these three labels, ADD is the one causing the most challenges in college. Accommodations are in place for his fine motor challenges and for his Low Vision.  All of his accommodations he receives for his CP and Low Vision are also beneficial accommodations for his ADD.  That is good.

The challenge is that accommodations cannot take the place of being organized, turning your work in on time, printing your work to turn in on time, prioritizing your tasks, staying on task, etc. If you have a child who has ADD, you understand this.  

The biggest issue my son is having right now is that all of the challenges are battling to be the forerunner in his life.  It has been a tough time for him which means a tough time for everyone else here.

Because prioritizing his work is a challenge and time management are challenges, due dates are like four letter words to S.  He thinks due dates should be fluid dates and can be moved if that works better for him.  If he’s getting tired or easily distracted, he should just be able to stop his work until it is a better, more convenient time for him.  That worked when he was homeschooled; it doesn’t work in college.  

Due dates are not optional!

He heard this while he was homeschooled also, but he didn’t listen to us (I thought you were exaggerating.)

There have been some many challenges so far this semester.  This week really threw some wrenches into his plans which were very good plans.  But….life happens.  He survived, and we survived.  His white board might be completely erased this weekend. We are all breathing a little easier right now.  

I will be on the couch with chocolate and wine (I’m not going to lie.).

Did you ever think....?

“Did you ever think when you brought me home from Bulgaria that one day you would be driving me to college?”

This is the question my son asked me the other morning on our drive to campus. Hmmm…..It is a valid question.  Fourteen years ago S came home from Bulgaria.  At the time, we knew he had Cerebral Palsy.  He has since added the labels ADD and Low Vision to his medical resume.  

What were our expectations of the 4 year old who came into our lives?  Was it college?  I don’t know that college was the expectation; however, we did think of it as a possibility.  It’s hard to gauge what any 4 year old is going to do in 14 years, especially one who speaks a different language than everyone else in the family.

We just knew that we wanted every possible opportunity made available to him, so he would be prepared for whatever path he desired - college, technical education, work, etc.  In order for college to be a possibility, he needed to be pushed academically.

We have been blessed along his educational journey with mostly positive experiences and some negative experiences.  All of them have provided us with learning opportunities.  What works for S and what doesn’t work.  What are his abilities?  What are his strengths?  What are his weaknesses?

Attending college was the option he picked.  Not only is he attending, he is doing well.  He has learned a lot about himself in the 4 weeks he has been attending class.  We are seeing him take ownership of his learning (hallelujah!).  He is self-advocating.  He is meeting with his professors and creating personal relationships with them.  He asks for help when he needs it.

The answer to his question would be, “We just wanted you to do what you wanted to be happy.” 

The better question would probably have been, “Can you believe you are the parents of a college student?”  

I will be on the couch with chocolate trying to figure out how my kids are getting older while I am not.  Have a great weekend!

The first week of college

My son started college this week.  This is a BIG deal at our house.  S has worked very hard to get to this point in his life.  He hasn’t done this alone.  We haven’t done this alone.  It has taken a village to get our son here.  In the post, “I have been successful”, my son writes about the help he has received from others.  It has truly been a group effort.

Let me tell you about this week.

The day before college starts

This post talks about all we have done this past year to get to this point.  It has been a lot of work, but we made it to the day before.

The first day of classes

I dropped my son off before his morning class.  His last words to me were, “Pray for me.”  Oh, I have been...a lot.

The second day of classes

Today was just one class, English.  My son had already had contact with the professor.  He said this classroom is smaller than the other classrooms he is in, so there are challenges maneuvering himself to the front of the room.  Other students helped get the table where he needed it.  The helpfulness of others has been a true blessing!

This weekend

This weekend we will be helping S get himself organized.  This is a challenge for him, but he is motivated.  He already has his new digital recorder.  He has purchased new Dragon software for himself (appreciate the student discount).  He needed the Premium version which is supposed to transcribe his recorded lectures.  Can we get a Hallelujah for that?  Technology is a wonderful thing!!

In addition to starting classes, my son also had a dental appointment and a chiropractor appointment.  Fun, fun, fun!

Next week should be a routine week of classes for him.  My friend who has offered to help with transportation has already asked about next week.  I told her we need one full week to really work through the logistics of everything - timing for drop off/pick up, tutoring schedules, additional meetings, and which parking spaces are the best options for S to get himself to class.  We had some issues with Thursday’s parking spaces and the path that a wheelchair is expected to get through and around.  S decided he would rather wheel himself for a longer distance than have the closer route.

This weekend will be spent on the couch with chocolate enjoying my son's successful week!

The day before college starts

Here it is!  We made it.  It is the day before college starts.  It has been a process to get to this point. There have been many appointments scheduled, many trips to the college, many assistive technology decisions made, many logistical things that we have had to think through….but it has arrived.  The day before school….

How did we get here?

It has been a process.  We like to tell our son that these are all learning opportunities for him.  I think he’s tired of all of these opportunities.

The following list of blog posts is kind of a picture of what the process has been like the past year.  We started working toward this transition a long time ago, but some things just can’t be done until the end.

6 Steps for Transitioning a Child with Special Needs
When the insurance authorization letter arrives...

Low Vision Diagnosis
We visited the college.

Senior Stress and ADD

Visit with DBVI Vocational Rehab

Get through the wave

Getting ready for college

Ummmm...you don’t know what it’s like

A day at the college

Who knew buying a bag was so difficult?

Stop looking at me!

A Week of College Stuff

College just got real.

Homeschooling was REALLY comfortable!

What have we been doing this week?

This week has been a collaborative effort on our family’s part to make sure that S has everything he needs to be successful.

We have been to campus a number of times in the past week making sure S can get himself around campus.  The challenge he has with his Low Vision is that he can’t see the building names across campus.  He needs to know his exact path to follow to get from A to B.  We have visited campus frequently.  He has wheeled himself around.  We have talked out a path.  We have found landmarks for him to identify.  

Oh...another challenge is that it’s not just a matter of getting to the building and entering a door. He has to find the door that has the handicap accessible button or the door with the ramp.  

One more challenge S has is that he has a horrible sense of direction; however, he is very good with maps and creating a picture in his head.  He has studied the campus map.  We created a campus made of Legos, and he has moved the Lego man around campus and talked about the path.

He has his school supplies.  His supply list is somewhat different than other students.  He has Assistive Technology devices and software to help with his Low Vision and fine motor issues due to Cerebral Palsy.  He is using Zoom Text, Dragon Dictation, and the EmPower program through efofex software (free software for students with special needs to help with math and science equations and graphing) along with:

The Transformer which projects an enlarged image onto his laptop screen.  He has just received this, so he needs some practice with it to see how helpful it will really be.

He received a syllabus already from one teacher with her supplies on it.  We have had to try to figure out exactly what he will need from that list as we look at how he will adapt her requirements to fit his needs.  He has emailed her, and she seems quite receptive to what he has suggested.

S also has ADD which presents a challenge when we are talking about college.  Time management and planning are going to be key in his success.  He likes using Google Calendar and the task list.  He has already entered all of his assignments from the syllabus he has received.  (I won’t tell how long it actually took him to do that task.)

S likes looking at a calendar also.  We have a 4 week calendar on our fridge that he frequently stops by to look at and gets sucked into the “Calendar Zone”.  We purchased a 4 month calendar to hang on the wall near his desk.  J has filled it in for him for this semester and color coded everything for S.

At this point, we believe we have everything in place for S to be successful.  I'm sure we are missing something. I am anxious to talk to him tomorrow afternoon to see how his first day went. As he likes to tell us, “You are more excited about this than I am.”  Maybe...just maybe….

I will be on the couch with chocolate looking forward to seeing how this next chapter in my son’s life plays out!